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Research Outputs

Work Package 8

Research Topic

Jonas EgebartPatient involvement

Lead: The Danish Society for Patient Safety (DSPS),

Contact: Jonas Egebart

Description of work

Why the research topic is important

The patient is the only one to be present thorough his course of contacts with the healthcare system. Patient involvement in primary care patient safety is important because:

  • the patient and his relatives are a possible untapped resource for safer and more effective care and treatment.
  • the patient and their relatives can, by active involvement, be the “final barrier” to prevent errors.
  • when the patient is involved, preferences for care and treatment are known to the providers allowing for a better match between options, choices and wishes.


What have we done (our methodology / approach)

The work package consist of two phases:

1) to identify methods for involving patients in primary care patient safety,

2) to develop practical toolkits.

In phase 1 we conducted a survey (online questionnaire) with both patients and professionals in six countries. To assess current best-practice we completed a literature review of both peer-reviewed indexed literature about Europe, but also drawing on grey literature from significant patient safety institutions in the Western world.

Phase 1 will be concluded by a set of recommendations from an international panel during 2012.

Phase 2 is on-going.

What is/are the key result(s) and why are the results important

Judging by the number and character of publications included in the literature review, patient involvement in patient safety in European primary care is quite an understudied topic.

The literature points to a great need for further interventions and research with a focus on testing the potentials and weaknesses of patient involvement strategies and methods to improve patient safety. The following topics also call for attention:

1) the patient perspective including their ability to translate safety concerns into a willingness to engage in safety and contribute to patient safety in a timely and effective manner,

2) trust and the effect of patient involvement on the patient-provider relationship,

3) the diversity of patients in primary care and their capabilities in relation to patient involvement in safety, and

4) the challenges to a patient safety culture in primary care which encompasses multiple sites, health professions, geographical environments etc.

The results from the survey will be available first quarter of 2012.

Tools and Guidance notes

Links to Tools and associated Guidance Notes provided more fully under the "Tools for GPs and Patients".

  • Patient involvement in Patient Safety: A literature review about European primary care- The literature review is useful for clinicians and administrators to assess the current knowledge prior to engaging with patient involvement activities.
  • The aim of the Patient Involvement Work Package (WP 8) of the LINNEAUS EURO-PC project is to identify best practice for patient involvement interventions to improve patient safety in primary care.  On May 23rd 2012, an international LINNEAUS panel of patient safety experts convened in Copenhagen to formulate recommendations to policy makers and professional organisations across the EU.  The purpose of the meeting was to develop consensus recommendations that can be applied across the EU. The panel sought to integrate the knowledge and experience that has been identified.   The panel reached an agreement on a number of recommendations, which are presented in this statement.  
  • The LINNEAUS EURO-PC Panel Statement on Patient Involvement in Primary Care:  THE COPENHAGEN STATEMENT

Journal papers


Conference proceedings

  • Andersen, V. “Involving patients in patient safety. How do you communicate patient safety with your patients?”, WONCA oral presentation, Warsaw 8-11 Sept 2011.

LINNEAUS deliverable(s)


Other LINNEAUS reports


- The Danish Society for Patient Safety.


- Thanks for Asking